Day by Day

Early reviewers, family friends, and medical professionals have called James Robertson's memoir, Day by Day: There is Always a Little Bit More everything from "gut-wrenching" to "beautiful and touching." These comments encapsulate the more than forty years of caring for their special needs son, Graham, who is not just James and his wife, Kari's, eldest child, but also a beloved brother, uncle, and friend, who has never been defined by his disability, a rare form of epilepsy called Lennox-Gastaut Syndrome. The story is mostly told from a father's perspective but also includes chapters from immediate family members, and a life-long special friend who helped Graham tell his side of the story too. The raw, vulnerable, and often difficult to read intensity of this story is intentional but the author's hope is to encourage other families struggling with the challenges of supporting a loved one with special needs-from navigating an under resourced medical system to finding much needed and often elusive programs and dwindling government funding- to reach out for support and also to know that they are not alone.