The Mutant Project
Inside the Global Race to Genetically Modify Humans
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- $14.99
Publisher Description
An anthropologist visits the frontiers of genetics, medicine and technology to ask: whose values are guiding gene-editing experiments, and what are the implications for humanity?
At a conference in Hong Kong in November 2018, Dr Jiankui He announced that he had created the first genetically modified babies – twin girls named Lulu and Nana – sending shockwaves around the world. A year later, a Chinese court sentenced Dr He to three years in prison for ‘illegal medical practice’.
As scientists elsewhere start to catch up with China’s vast genetic research program, gene editing is fuelling an innovation economy that threatens to widen racial and economic inequality. Fundamental questions about science, health and social justice are at stake. Who gets access to gene-editing technologies? As countries loosen regulations around the globe, can we shape research agendas to promote an ethical and fair society?
Professor Eben Kirksey takes us on a groundbreaking journey to meet the key scientists, lobbyists and entrepreneurs who are bringing cutting-edge genetic modification tools like CRISPR to your local clinic. He also ventures beyond the scientific echo chamber, talking to doctors, hackers, chronically ill patients, disabled scholars, and activists and who have alternative visions of a genetically modified future for humanity.
The Mutant Project empowers us to ask the right questions, uncover the truth, and navigate this new era of scientific enquiry.
‘This book is a beautiful mutant, part mystery, part horror story, part genetic science and totally engaging. Kirksey takes us adventuring – whirling through an exciting and informative journey we encounter genes, CRISPR, technology, scientists, people, hopes, dreams and land smack dab in the mess of “human nature”. If you only read one book about genomic technologies and human futures, this should be it.’ —Agustin Fuentes, Professor of Anthropology, Princeton University
‘Written with the gumption of an ethnographer, historian and investigative journalist all in one, The Mutant Project is a fascinating record of close-up encounters at the vanguard of human genetic engineering. That rare kind of scholarship that is also a page-turner.’ —Britt Wray, author of Rise of the Necrofauna: The Science, Ethics, and Risks of De-Extinction
PUBLISHERS WEEKLY
Anthropology professor Kirksey (Emergent Ecologies) explores the social impact gene editing in this unfortunately lackluster treatise. He begins with controversial Chinese scientist Jiankui He, who, in 2018, used CRISPR technology to alter two human embryos' DNA, and then looks into the field's ethical questions. These include it being too expensive for more than a small global elite to access, and the prospect of genetic traits being eliminated from embryos for spurious as well as valid reasons. To illustrate these concerns, Kirksey introduces intriguing characters, including a DIYer who tried to cure himself of HIV and "disrupt the business model of big biotech companies" he sees as contributing to gene therapy's high costs, and an Indonesian artist who created a CRISPR-inspired art installation to investigate the uncertain "place for brown and Black babies" in a color-conscious world where fetus skin color could be changed at will. However, Kirksey's discussions of the affordability problem yield no convincing solutions, and he has a habit of repeatedly refers to one person or another as a "white guy," striking an odd note. Those looking for an in-depth analysis of the possibilities and dilemmas of gene editing will be disappointed.
