Not So Different
What You Really Want to Ask About Having a Disability
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- ¥1,400
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- ¥1,400
発行者による作品情報
Not So Different offers a humorous, relatable, and refreshingly honest glimpse into Shane Burcaw’s life. Shane tackles many of the mundane and quirky questions that he’s often asked about living with a disability, and shows readers that he’s just as approachable, friendly, and funny as anyone else.
Shane Burcaw was born with a rare disease called spinal muscular atrophy, which hinders his muscles’ growth. As a result, his body hasn’t grown bigger and stronger as he’s gotten older—it’s gotten smaller and weaker instead. This hasn’t stopped him from doing the things he enjoys (like eating pizza and playing sports and video games) with the people he loves, but it does mean that he routinely relies on his friends and family for help with everything from brushing his teeth to rolling over in bed.
A Chicago Public Library Best Book of 2017
PUBLISHERS WEEKLY
Burcaw follows his YA memoir, Laughing at My Nightmare, with a picture book that offers an approachable and candid look at his life with spinal muscular atrophy (SMA). Throughout, he answers some common questions people have about his life and appearance, such as, "But how do you do things?" and "How does your chair work?" Burcaw's responses usually include a touch of humor, but he's always firm and clear; in response to the opening question, "What is wrong with you?" he says: "Absolutely nothing is wrong with me. I'm just a little different!" Carr's photographs provide readers the opportunity to truly get a sense of Burcaw's life while also creating a few opportunities for silliness in one spread, Burcaw uses his wheelchair and rope to hoist his brother up to a basketball hoop (something the brothers attempted in real life, resulting in a broken motor). An author's note includes a more in-depth medical explanation of SMA, as well as information about Burcaw's nonprofit organization. Ages 6 9. Author's)
