One of Us
Conjoined Twins and the Future of Normal
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- € 22,99
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- € 22,99
Beschrijving uitgever
Must children born with socially challenging anatomies have their bodies changed because others cannot be expected to change their minds? One of Us views conjoined twinning and other “abnormalities” from the point of view of people living with such anatomies, and considers these issues within the larger historical context of anatomical politics.
Anatomy matters, Alice Domurat Dreger tells us, because the senses we possess, the muscles we control, and the resources we require to keep our bodies alive limit and guide what we experience in any given context. Her deeply thought-provoking and compassionate work exposes the breadth and depth of that context—the extent of the social frame upon which we construct the “normal.” In doing so, the book calls into question assumptions about anatomy and normality, and transforms our understanding of how we are all intricately and inextricably joined.
PUBLISHERS WEEKLY
Analyzing case studies past and present, Dormurat Dreger, an associate professor of science and technology at Michigan State, questions assumptions about anatomical norms in a solemn and politically passionate exploration of separation surgery on conjoined twins. Providing historical and contemporary evidence that most adult conjoined twins do not desire to be separated, and that many surgeries are carried out on children too young to object, Dormurat Dreger voices distaste for Americans' failure to tolerate anatomical difference and instead fetishize individualism at all cost. Making ample use of her previous study of hermaphrodites, she likens separation surgery to reconstructive surgery on the sexually ambiguous genitalia of "intersex" children. Both types of surgery, she argues, share the dubious social rather than strictly medical goal of making such children appear more "normal." Aided by statistics that bespeak a high mortality rate, Dormurat Dreger mines cases of separation surgery around the world for the rational and ethical flaws in medical decision making, building a strong case against intervention. At the heart of her moral questioning is suspicion of the institutions involved, and of parents who may be motivated more by ill-conceived feelings about normality than by rational consideration for the children's futures. This pithily provocative critique of medical paternalism and society's blind spots vis- -vis anatomical standards provides a valuable opportunity to ponder the high-profile surgeries on conjoined twins that most of us know only through the news headlines we habitually fail to question. 13 illus.
