Navigating Your Transplant Journey

Tony Duke is a double lung transplant recipient and Beth Campbell Duke, his wife, is his 'designated caregiver'. Tony received his transplant on May 4, 2016.


Over the course of their own journey - both before and after transplant - Beth and Tony coped with a significant number of events faced by all organ transplant patients and family members: figuring out how to navigate our healthcare systems and facing the financial and mental health challenges that still too often go unseen and so unacknowledged.


They've been working to develop TransplantRogues.com into a website where patients and families can find information to help them make sense of the enormous whirlwind they find themselves in.


This book/workbook has evolved as they sorted out their own challenges, and watched other patients and families struggle with the massive learning curve that is an organ transplant.


The information in 'Navigating Your Transplant Journey' is broken down into phases of the transplant journey.


We hope that this book can become your go-to resource during your journey - and that the patient binder we help you create can keep you organized. It will contain contact information, medical information, legal documents and other things you collect along the way – all in one spot.


As you use this workbook and develop your patient and caregiver binder, you'll become better connected to your support systems and have a way to get your medical information and plans in place.