In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all.
Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. Powerful and passionate, Care Work is a crucial and necessary call to arms.
It hurt and I needed to hear it
I almost always read fiction books. I heard some buzz about this book from a podcast I listen to and I’m so happy I gave it a try and bought the audiobook (which is narrated by the author herself). Care Work explores the concept of justice for disabled persons. It explains why, or how, white abled people are the reason there are justice movements in the first place. This concept was foreign to me before listening to this book. I think I needed to hear it. I was in a bubble and didn’t know, didn’t realize, what could be different about my world that could make such a huge difference to people that are different than me.
I keep thinking about a quote from the book. “A led people, time’s up. Especially because you will eventually become us.” That’s such a powerful statement. The entire book is powerful and very true.
The section dealing with suicidality was hard to get through. I have known quite a few people that have been close to me that currently deal or have dealt with these ideations. As a mostly neurotypical person, hearing what the author had to say hurt quite a bit but also helped me to see things from a different perspective. It hurt and I needed to hear it (which seems to be how I felt during most of this book, to be quite honest).