Head above Water

This lyrical hybrid memoir revisits a lifetime's worth of personal journals to slowly piece together a narrative of chronic illness—a moving account of survival, memory, loss, and hope.

Shahd Alshammari is just eighteen when she is diagnosed with multiple sclerosis, and told by her neurologist that she would not make it past age thirty. Despite what she is told, by thirty, she has become a professor of literature, and has managed to navigate education systems in both Kuwait and the United Kingdom and inspire generations of students.

Head above Water is the painstaking, philosophical memoir of Shahd Alshammari's life of triumph and resistance, as the daughter of a Palestinian mother and Bedouin father, as a woman marked "ill" by society, and as a lifelong reader, student, and teacher. Charting her journey with raw honesty, Shahd explores disability, displacement, and belonging—not only of the body, but of culture, gender, and race, and imparts wisdom of profound philosophical value throughout. It is people, human connections, that keep us afloat, she argues—"and in storytelling we have the power to gain a sense of agency over our lives."