Knowing Alex
Life with Agenesis of the Corpus Callosum
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4.7 • 6 Ratings
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- $4.99
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- $4.99
Publisher Description
On the day their son was born Rich and Cindy Reisenauer were advised to institutionalize him. Alex had been diagnosed with frightening and unpredictable condition with the indecipherable name of Agenesis of the Corpus Callosum. Simply put, Alex was missing an integral portion of his brain—the band of nerve fibers that connects the two hemispheres.
This poignant and inspirational memoir, written by Alex and his mother, Cindy, tells how their family came to know the person Alex is, and how they helped him become the person he could be. KNOWING ALEX Life with Agenesis of the Corpus Callosum is a story of love and family, friendship and understanding, perseverance and triumph over adversity.
Customer Reviews
Knowing Alex
My newborn daughter has AgCC. I found this book while searching for a personal story of someone with the same condition. Reading Alexs story has given me such valuable insight and more importantly, HOPE. Thank you for sharing your story.
Finally! A non-medical first hand perspective
I am not a reader! I actually purchased this book while trying to find it as an audiobook, but much to my surprise, this is the 1st time I've ever read a whole book in 1 day!
My son was born agcc also and we have had so many struggles in school, with peers, and with siblings. It's hard to always defend him without being called out as "babying him". I have witnessed many uncomfortable social situations and am helpless to change those "typical" children who will never accept a "different" child. More than
anything in the world my son longs for a friend, he wants to know what it's like to have a best friend, he has had a couple friends but usually when they realize they have different maturity levels, they move on. My son is 12 now and at the point in school that he is not growing academically, we live 2 hrs from special needs schooling and are at a stand still. I really wish everyone I know, especially his teachers could read this book, nobody has ever heard of agcc so our little town of 3000 ppl have never had to deal with anything except a few typical special education kids.