Within hours, a baby boy unexpectedly goes from his crib to the pediatric intensive care unit as he begins the fight for his life.
What initially appears to be liver failure is later diagnosed as Hemophagocytic Lymphohistiocytosis and the only cure is a successful bone marrow transplant. But what happens when that doesn’t work, and the doctor gives up on him? As if that wasn’t enough, the family then receives news that their other child somehow carries the same, extremely rare genetic mutation and could die at any moment. This story is a family’s unbelievable journey through the depths of hell and living through every parent’s worst nightmare, twice. And then out of nowhere, they receive the ultimate gift, sent from above. You will be amazed at their unconditional love, dedication and their fortitude to leave a legacy-that love does trump grief.
Kristin Akin lives in St. Louis with her family. She stays busy working on their nonprofit foundation, The Matthew and Andrew Akin Foundation and volunteering with the Ronald McDonald House Charities of St. Louis. Looking back now, being a communications major at the University of Tulsa and writing so many papers has proven its value as she completes her first book. She loves cooking and entertaining, traveling and just laughing as much as life will allow. In her next life, she will finally be the pilot she always dreamed of being.
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I got the special privilege to help care for Matthew and Andrew occasionally. What an amazing honest insight into lives of patients and their families. This is just the book we need to keep our perspective in check as nurses caring for patients. To most, it is just a job but to a pediatric nurse our daily workplace is so much more. Thank you for allowing the rest of us a glimpse into your world we so easily take for granted.