The story of one mother’s fight against the medical establishment to prove the link between infection-triggered PANDAS and her son’s sudden-onset OCD and Tourette syndrome.
The summer before entering sixth grade, Sammy, a bright and charming boy who lived on the coast of Maine, suddenly began to exhibit disturbing behavior. He walked and ate with his eyes shut, refused to bathe, burst into fits of rage, slithered against walls, and used his limbs instead of his hands to touch light switches, doorknobs, and faucets.
Sammy’s mother, Beth, already coping with the overwhelming responsibility of raising three sons alone, watched helplessly as her middle child descended into madness. Sammy was soon diagnosed with obsessive-compulsive disorder (OCD) and later with Tourette syndrome. Unwilling to accept the doctors’ prognoses for lifelong mental illness and repeated hospitalizations, Beth fought to uncover what was causing this decline. Beth’s quest took her to the center of the medical community’s raging debate about whether OCD and Tourette syndrome can be caused by PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections). With the battle lines firmly drawn, Beth searched until she found two cutting-edge doctors who answered that question with a definitive yes. Together, they cured Sammy. Five years later, he remains symptom free.
Maloney's debut chronicles her son, Sammy, and the illness that, almost overnight, transformed him from a sunny, bright boy (described by one teacher as "the purest math mind the school had ever seen") into an antisocial stranger "so dominated by obsessions, compulsions, and rules that daily life becomes impossible." Sammy's descent into mental illness was diagnosed as severe Obsessive-Compulsive Disorder, Tourette's and a number of other ailments, all promising a lifetime of disability; it wasn't until a family acquaintance, whose son exhibited the same symptoms for 10 years, urged Maloney to have Sammy tested for Strep that they learned his condition was treatable. Describing herself as "part courtroom lawyer and part detective," attorney Maloney perseveres with ferocity and sharp storytelling instincts, making this medical mystery-meant to inform families dealing with mental illness-a tear-wrenching crowd-pleaser.
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I finished this book in 3 days. Every parent should read this. I believe every one of us can relate to any number of parts to this incredible story!