The Mutant Project
Inside the Global Race to Genetically Modify Humans
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4.0 • 1 Rating
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- $11.99
Publisher Description
An anthropologist visits the frontiers of genetics, medicine, and technology to ask: Whose values are guiding gene editing experiments? And what does this new era of scientific inquiry mean for the future of the human species?
"That rare kind of scholarship that is also a page-turner."
—Britt Wray, author of Rise of the Necrofauna
At a conference in Hong Kong in November 2018, Dr. He Jiankui announced that he had created the first genetically modified babies—twin girls named Lulu and Nana—sending shockwaves around the world. A year later, a Chinese court sentenced Dr. He to three years in prison for "illegal medical practice."
As scientists elsewhere start to catch up with China’s vast genetic research program, gene editing is fueling an innovation economy that threatens to widen racial and economic inequality. Fundamental questions about science, health, and social justice are at stake: Who gets access to gene editing technologies? As countries loosen regulations around the globe, from the U.S. to Indonesia, can we shape research agendas to promote an ethical and fair society?
Eben Kirksey takes us on a groundbreaking journey to meet the key scientists, lobbyists, and entrepreneurs who are bringing cutting-edge genetic engineering tools like CRISPR—created by Nobel Prize-winning biochemists Jennifer Doudna and Emmanuelle Charpentier—to your local clinic. He also ventures beyond the scientific echo chamber, talking to disabled scholars, doctors, hackers, chronically-ill patients, and activists who have alternative visions of a genetically modified future for humanity.
The Mutant Project empowers us to ask the right questions, uncover the truth, and navigate this brave new world.
PUBLISHERS WEEKLY
Anthropology professor Kirksey (Emergent Ecologies) explores the social impact gene editing in this unfortunately lackluster treatise. He begins with controversial Chinese scientist Jiankui He, who, in 2018, used CRISPR technology to alter two human embryos' DNA, and then looks into the field's ethical questions. These include it being too expensive for more than a small global elite to access, and the prospect of genetic traits being eliminated from embryos for spurious as well as valid reasons. To illustrate these concerns, Kirksey introduces intriguing characters, including a DIYer who tried to cure himself of HIV and "disrupt the business model of big biotech companies" he sees as contributing to gene therapy's high costs, and an Indonesian artist who created a CRISPR-inspired art installation to investigate the uncertain "place for brown and Black babies" in a color-conscious world where fetus skin color could be changed at will. However, Kirksey's discussions of the affordability problem yield no convincing solutions, and he has a habit of repeatedly refers to one person or another as a "white guy," striking an odd note. Those looking for an in-depth analysis of the possibilities and dilemmas of gene editing will be disappointed.
