When the Baby Is Not OK: Hopes & Genes

What if the baby is not OK? Out of nearly four million who get newborn screening each year, about 12,000 babies are diagnosed with a "rare disease" in the US alone. Jennifer J. Brown's daughters were two of them. It was in their genes. As a student who thought about being a scientist first, and becoming a mother second, the news changed her life forever. This intimate memoir of pregnancy, childbirth and raising special kids revises the story of what to expect with hope. By turns heartbreaking and horrifying, educational and inspiring, here is a raw and remarkable journey of triumph and acceptance.