Where I Stand: On the Signing Community and My DeafBlind Experience

    • 5.0 • 4 Ratings
    • $5.99
    • $5.99

Publisher Description

"I love being DeafBlind and would not change it for the world."

This collection of essays from one of the country’s leading voices on issues facing the signing community appears at a time of troubling trends and exciting new developments. Through his lucid and accessible prose, John Lee Clark delves into questions ranging from why hearing parents of Deaf children don’t sign to how written American Sign Language will change the course of Deaf literature. As a second-generation DeafBlind man, Clark also takes us on a tour of his experiences as a student, father, husband, and “client” of special services. Filled with startling observations and unapologetic assertions, Where I Stand challenges and broadens readers’ understanding of an important but often overlooked community.

"Disability is everywhere. It is, in fact, universal for to be human is to be disabled."

“The number of culturally Deaf and DeafBlind writers who are prepared to speak out is frighteningly small. I am delighted and proud to include John Lee Clark in this group. Even if you disagree with him, I urge you to read his book. It’s the red pill—take it. It’s worth it.” —Michele Westfall, Deaf advocacy columnist

"It's an exciting time to be DeafBlind."

“Where I Stand is a pointed and poignant confrontation with society’s perception of ‘disability.’ In these precarious and turbulent times, his essays are bedrocks of sanity and hope.” —Christopher Jon Heuer, author of Bug: Deaf Identity and Internal Revolution

Fiction & Literature
December 13
Handtype Press
Draft2Digital, LLC

Customer Reviews

julie585 ,

Refreshing Honestly and an Enjoyable Read

As a parent to my 9 year old Deafblind son, the book was extremely enlightening. It's the 1st book of its kind I've found in the iBook store (my preferred format these days.) I read only the 1st chapter before reading the 2nd half of the book then making my way back to the beginning. I thoroughly enjoyed how it was broken down into easily digested pieces.

The author is very opinionated. I found it amusing that I enjoyed the parts that were somewhat offensive to me the most! Why hearing parents don't learn to sign was one of my favorite essays. It let me see the differences in my own parenting style that have allowed me to communicate with my son. I communicate in a language that is not native to me, in a language I learned mostly alone with very little resources and very little access. The essay made me want to embrace those differences rather than feeling alone and isolated from the signing community.

The essay on leaving the Deaf community may well have opened my eyes to the issues I currently have with the local Deaf community. We sign differently and are not accustomed to signing with other adults and find our limited childish vocabulary embarrassing. We don't fit in and news of my son failing in his 2nd year at the school for the Deaf was heartbreaking. I was feeling as though he was being discriminated against for being "only" hard of hearing, without hearing aid or cochlear implant or FM system to help. Idk how there could be an "only" in combination with being blind! Thank-you for making me realize that we are all only human, all failable and flawed. My son my thank-you too someday if he's able to overcome the obstacles and learn to communicate with the rest of the world, not just mommy and daddy!

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